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Myotonic Dystrophy

Myotonic dystrophy (DM) is a rare genetic disorder that can cause problems with many systems in the body. The various forms of myotonic dystrophy are caused by changes at different sites in the DNA of an individual. DM1, affects an estimated 1 in 8,000 people worldwide, or nearly 40,000 individuals in the US alone.

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Promise to Kate donates $15,000 to Wolfson Children's Hospital. See Where

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In The News

Action News Jax reports on our beach triathlon.

Smart Spending Magazine had Kate on their cover and showcased the July PTK event.

Myotonic Dystrophy News

The Muscular Dystrophy Association (MDA) has launched a clinical research network that will provide an infrastructure for trials of new treatments.


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